Disabled children and their families

Disabled children and their families

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The presence of a disabled child in the family can make significant changes in the structure, functioning, and roles of family members as a whole, creating an additional source of stress that can adversely affect the lives, feelings and thoughts of family members. Parents first experience frustration when they have a disabled child. Causes and why follow each other. There must have been something that shouldn't have happened. They do not know what happened to their children, so the family is in great concern. In particular, the mother spends the first few months with the uneasiness of not knowing what to do. They then blame themselves, their spouses and relatives or the medical team. It may take several months or years to accept what their child is. Many families cannot accept that their children are disabled. However, they tend to reject the disabled child, to feel ashamed, to hate, to humiliate and to ignore him as an individual. The handicapped child, on the other hand, turns to himself in the face of such situations and starts to live in an introverted mood. Since the child in such a life process cannot complete the steps in the developmental process regularly, he will be left behind for his peers and these irregularities will follow each other. It will manifest itself from speech, communication, cleanliness, clothing, basic cognitive skills such as reading and writing, all kinds of self-care skills and all other skills in the social sphere.

The situation of a disabled child may affect not only the individual but also the marriage relationship of the spouses, mother / father / child relations and siblings relations from time to time depending on the interactive nature of family life. The situation of a disabled child is very closely related to the feelings created by the parents and the reactions of the close environment (grandmothers, fathers, friends). Their perception of the situation in negative and desperation leads to similar feelings of the parents. The birth of each child leads to many innovations and changes in the family. This can be considered in parallel with the developmental stages of the family. It is like when the child reaches the age of school, the family begins to prepare for school. However, the birth and development of the disabled child personality characteristics, expectations from each other, life, profession, close environment and society also differ. These differences vary from family to family. and quantity. In general, families want their children's disability to change and develop in a short time, and this results in a negative effect on the treatment and rehabilitation of their children as a result of being disappointed with the fact that this treatment requires a long time and patience. Therefore, many families of children with disabilities do not want to bring their children to Rehabilitation Centers.

In order for the disabled child to receive information about education in a timely and correct manner, the psycho-social problems of having a disabled child in the family can be solved before proceeding, the family should have sufficient knowledge about social relations, society structure and disability. Families with disabled children should be taught what they can do and their attitudes and behaviors. First, community education for this group is required. Because of the low level of education of mothers with disabled children, they do not have sufficient and correct information about the disability of children. Therefore, as a result of misunderstandings and evaluations about the disability of the child, they carry the risk of making mistakes about the disability of the child. Children with disabilities have limited participation in daily life, urban life and community life. From education to health, from work and vocational rehabilitation, to culture and art, to improvement of sports and urban standards, from transportation to psychological and social support, from individual and family counseling services to continuous care when needed, there are many serious and pending problems. All expectations of families; It should be emphasized that being disabled is not a disease and that the main purpose is to make the disabled child self-sufficient to be as independent as possible, and that the family should be prepared psychologically and sociologically in accordance with this aim.

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